CNMC has one of the leading teams of researchers in the world and they are working very hard to find a way to build or replace Myelin that has been lost.Īs mentioned earlier, Christian has a brother named Jack, who was five years old when Christian went to Heaven. They were also very compassionate, which is sometimes a hard trait to find in the medical profession. VanDerver were extremely kind and helped to answer many of the questions that we had. The search for information and hope led us to Children’s National Medical Centerin Washington D.C. This passion continues and helps her deal with the loss of her “Little Angel.” Carolyne speaks with the child life advocates at each hospital to find out the needs of the children and to find out how we can help. Even while Christian was still alive, Carolyne would bring gifts, big and small, just to see a smile on a child’s face. Being able to spend time with other families and children at the two hospitals sparked Carolyne’s passion, which was making children happy. Christian spent many nights at each of the hospitals, along with Carolyne, his brother Jack and me. The same goes for much of the staff at Miami Children’s, which is where most of his testing took place. They were also very comforting at the times it was needed. Del Toro and much of his staff at Broward General helped us to deal with and understand many problems as they arose. Lauderdale area, we became very familiar with Broward General Medical Center and Miami Children’s Hospital. And I never run from conflicts.During our son’s battle, we grew close to many doctors, nurses, families and organizations throughout the country. And so, if you are in a situation, with whatever your problem is, find something you could rely on and stick to it, love that and do with that what you were meant to do. I believed if I could achieve that, all my sorrow and rejection would be over.Īnd true enough, it was over. One day I looked up into the sky and saw the majestic condors flying in the air. I didn’t have those questions when I was still in my sorrow, but all these questions came to me later, after I was loved and was cherished. But did it help me? Did it become better? Did I grow taller? No, nothing of that helped me. ![]() I held onto it and I felt sorry for myself and cried a lot, wanting to run away or something worse. In better words: I had embraced my problem before I made friends with my condors Tamo and Tima. And I am the hero and I embrace my problem. But after I made friends with my condors I named Tamo and Tima, everything changed. It’s just a disorder of my body.īut I never gave up on life and so I had lots of adventures roaming around the plateau where we live in Peru, South America, with my mother’s blessings. ![]() I can say that now after I learned to cope with it.) I was rejected by the local Indians as they couldn’t understand that that condition is not a sickness and so it can’t be really cured. Because of that disability, (I am saying ‘that’ disability, not ‘my’ disability because it’s a thing that happens to me, nothing more and because I am not accepting it as something bad. ![]() I am stuck in the body of a two year old, even though I am ten years old when my story begins in the first book of the Talon series, TALON, COME FLY WITH ME. My name is Matica and I am a special needs child with a growth disability. “Here is the voice of my main Character in my Talon book series, I’ll let her introduce herself to you:
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